More MS news articles for Sep 2001

Internet Research Survey for people with Multiple Sclerosis

http://www.msls.com.au/

What is the Internet Research Survey?

What affects your MS? What caused it? What makes it better? What makes it worse?

The Internet Research Survey is designed to collect anonymous data on what people think affects their MS. This could be alternative therapies, diet, or environmental factors. We will analyse your responses to select factors that a significant number of people believe affect their MS.

These factors will then be rigorously tested as part of the Australian MS Longitudinal Study which will be launched by MS Australia in 2002. The Australian MS Longitudinal Study is part of an international group of research projects looking at the many long-term changes that occur during MS.

These studies will lead to a better understanding of how people with MS can minimise their disability and maximise their enjoyment of life.

Do the survey!

About the survey

What is the purpose of the Internet Research Survey?

The cause and effective management of MS is still a mystery. Drugs prescribed by doctors can help but not cure MS. However, anecdotal evidence suggests that factors other than prescribed drugs may affect the course of MS. For example some people follow a particular diet because they feel it improves their MS. The Internet Research Survey is designed to collect anonymous data on what people think affects their MS, including complementary and alternative therapies, diet and nutritional supplements, environmental factors - in fact anything that people who live with the disease feel might be important. Your responses will be carefully analysed to select out potential factors that a significant number of people think affect their MS. These potential factors will then be more thoroughly tested in a more rigorous scientific manner, as part of the Australian MS Longitudinal Study scheduled to be launched by MS Australia in 2002. The Australian MS Longitudinal Study is part of a world-wide group of research projects working together to look at the many long-term changes that occur during multiple sclerosis. Hopefully, these studies will lead to a better understanding of how people with MS can minimize their disability and maximize their enjoyment of life you can help by completing the Internet Research Survey.

Who are the researchers involved?

Dr Rex Simmons, Project Manager
Australian MS Longitudinal Study
Canberra Hospital, Australia

Associate Professor Anne-Louise Ponsonby
National Centre for Epidemiology and Population Health
Australian National University, Canberra

Ms Ingrid van der Mei, Epidemiologist
Menzies Centre for Population Health Research
University of Tasmania

Dr Peter Sheridan, Director
MS Australia

For more information about the project please contact:

Dr Rex Simmons
Project Manager, Australian MS Longitudinal Study
Canberra Hospital
PO Box 11
Woden, ACT 2606
AUSTRALIA

Email: rex.simmons@act.gov.au

Who is supporting the Internet Research Survey?

The Internet Survey was supported in part by a monetary grant from members of Rotary International in Australia.

The Internet Research Survey is a preliminary investigation for the upcoming Australian MS Longitudinal Study. This is a key project of MS Australia, the peak body for MS research in Australia which includes State and Territory MS Societies. Visit the MS Australia website for more details of MS Australia and the planned Australian MS Longitudinal Study.

MS Australia is a member of the International Federation of MS Societies (IFMSS).

The software for the Internet Research Survey was developed on a not-for-profit basis by Aspect Computing Pty Ltd, Canberra Branch, Australia

Who can take part?

Anyone with MS can complete the survey. It does not matter where you live as long as you have MS. MS is the same disease in every country and your information is important. Be assured that this is an anonymous survey and that only group statistics will be published.

Do the survey!

The survey will take about 30 minutes to complete.

If you take prescribed drugs, complementary medicines, or nutritional supplements for your MS, you might like to have these handy so that you can refer to their labels as you fill out the survey.

Please answer all of the questions. We have provided a list of factors that might affect your MS but you can enter factors which are not on the list.

Please be concise in the sections that require a written response.

Please complete the survey once only. When you have finished, click on Submit to return your Survey to us. It may take a few moments to submit the survey - please be patient and don't click the Submit button more than once!

http://www.msls.com.au/SurveyForm.asp

The survey is best viewed with Internet Explorer 4.0+ or Netscape 4.0+.