More MS news articles for October
needs of people with MS examined
October 9, 2003
On 8 October, the MS Trust officially launched the results of our Information
Needs study at the Royal College of Surgeons in Edinburgh.
Conducted by researchers from Loughborough University, the study provides
a snapshot of the needs of people with MS at the turn of the century. The
views of 2133 people with MS - about one in forty of the UK MS population
- make this the largest study of its kind to date.
The survey highlights a number of key findings:
Edith Rifkind, who chaired the launch in Edinburgh, said "I was diagnosed
with MS in December 1997 and was fortunate to be able to seek constructive
and realistic information and support. Although incurable, MS is far from
untreatable, and information is crucial to promoting a positive outlook."
Someone with MS should be seen as a person, not as "a person with MS"
Before 1980, fewer than 20% of people received any information at diagnosis
Between 2000 and 2001, 30% of people still received no information
Although information provision has improved, it lacks consistency and on
specific topics is uneven
A distinction needs to be made between needs at diagnosis and over the
For more information on the study, go to the Research
Copyright © 2003, MS Trust