http://news.bbc.co.uk/hi/english/uk/scotland/newsid_1583000/1583049.stm
Saturday, 6 October, 2001, 14:14 GMT 15:14 UK
The Multiple Sclerosis Society has warned that MS sufferers in Scotland could soon be denied treatment that is "vital" to them.
The MSS said it feared the Health Technology Board for Scotland (HTBS), was planning to deny people with the illness access to beta interferon.
The society said it understood HTBS was to agree to work being produced by the board's sister organisation in England, NICE.
This would deny sufferers the drug.
Scotland has the highest prevalence
of MS in the world, with abour 10,000 people affected.
Although there is no cure for MS,
beta-interferon is considered an effective treatment.
Mark Hazelwood, the society's director
in Scotland, said: "All the signs are there that HTBS is trying to slip
this decision through with minimum debate.
"This medicine is considered to be
vital to the treatment of many people with multiple sclerosis in Scotland."
The society said it was also "concerned"
the board would accept NICE's findings without question.
Mr Hazelwood said: "HTBS have said
they will not question the work of their English counterparts, yet senior
staff at HTBS seem to be alarmingly ignorant of very valid criticisms made
of NICE's work by groups including eminent doctors."
He added that the society had written
to the Scottish Parliament's Health Committee to ask them to consider the
procedures employed by HTBS, which it accused of being "secretive".
However, Dr Angus Mackay, chairman
of HTBS, said it was too early to say what decision the board would make
regarding beta interferon.
He said the board, which provides
advice to NHS Scotland on the cost effectiveness of health interventions,
would not simply accept NICE's findings.
Dr Mackay said: "We have made no
decision whatsoever in the nature of advice we will give to the NHS here
in Scotland.
"We expect NICE to report its finding
next month and we will look at what it has said and done.
"We have a huge amount of respect
the work carried out by NICE and will use their findings to assist us in
our decision."
He said that NICE rejected the use
of the drug several months ago and had been told to look at its use again
after an appeal from patient organisations and pharmaceutical manufacturers.