20 December 2002
Health Minister Jacqui Smith has announced membership of the group responsible for advising on standards for the diagnosis, treatment, health and social care of people with neurological conditions.
The External Reference Group for the National Service Framework on Long-term Conditions (NSF) brings together health and social care professionals, service users and carers and other advocates to develop a blueprint for a neurological and disability service.
The aim of the NSF is to raise standards, reduce variations in services and improve the quality of care for people with neurological and other long-term conditions. Current plans are to publish the NSF in 2004 with a 10-year implementation period from 2005.
Jacqui Smith said: "People with neurological conditions have in the past have had to fit in with the way care is provided locally, whether or not it met their individual needs. This gives us a real opportunity to develop, standards across health and social care that will drive higher quality, more accessible services."
The chair of the External Reference Group is Diana Whitworth, Chief Executive of Carers' UK. Deputy chairs are Lynne Turner-Stokes, Professor of Rehabilitation Medicine, King's College Hospital, London, and Andy Mckeon, Director of Policy and Planning, Department of Health.
ERG members are:
Alan Burns, Chief Executive, Trent Strategic Health Authority
Maggie Campbell, Brain Injury Co-ordinator and Consultant Neurophysiotherapist, Sheffield West NHS Primary Care Trust
Dr Geoffrey Carroll, Clinical Director, Eastern Regional Specialised Commissioning Group
Julie Charles, Chief Executive, EQUALITIES ? The National Council of Disabled People from Black and Minority Ethnic Communities, London
Chris Clough, Medical Director and Consultant Neurologist, King's College Hospital, London
Marilyn Ekers, service user, York
Wagih El Masri, Consultant Surgeon in Spinal Injuries and Director, Midlands Centre for Spinal Injuries
Professor Pam Enderby, Professor of Community Rehabilitation, University of Sheffield
David G. Hardy, President, Society of British Neurosurgeons, Addenbrookes's Hospital, Cambridge
Dr Maggie Helliwell, General Practitioner, Airedale PCT & Ling House Medical Centre, Keighley
Jackie Holt, Director of Nursing and Hospital Services, Walton Centre for Neurology & Neuroscience NHS Trust
Jeff Jerome, Director of Social Services and Housing, London Borough of Richmond
Glyn Jones, County Manager ? Physical Disability Services, Hampshire County Council Social Services Department
Norman Keen, carer, London
Maureen Kelly, Chair, The Neurological Alliance, Liverpool
Barbara Kennedy, Chief Executive, Milton Keynes Primary Care Trust
Helen McCloughry, Occupational Therapist and Acting Intermediate Care Manager, Nottingham City Social Services and Primary Care Trust
David Pink, Chief Executive, Long-term Medical Conditions Alliance, London
Jill Stewart, Policy Manager ? Health and Social Care, Disability Rights Commission, London
Dr Andy Tyerman, Consultant Clinical Neuropsychologist & Head of Service, Community Head Injury Service ? Vale of Aylesbury Primary Care Trust
Dr Ian Williams, Director, North West Clinical Neuroscience Partnership, Merseyside