http://www.washingtonpost.com/ac2/wp-dyn/A2072-2001Jun29?language=printer
Sunday, July 1, 2001; Page B04
"You must be so excited! It's great
what blind people can do!" said the woman standing next to me at Starbucks
a couple of weeks ago. I groaned inwardly as I folded my white cane and
sat down with my coffee. Erik Weihenmayer had just become the first blind
man to climb Mount Everest, putting him on the "Today" show and the cover
of Time magazine. The sighted folks were inspired again, and I knew what
was coming. "So?" she continued, "when are you going to climb Mount Everest?"
If this encounter had been unique,
I would have laughed and shrugged off the woman's misplaced admiration
and silly question. But anyone who's disabled can tell you that the experience
is all too common.One of us bursts onto the cultural radar screen as a
superhero, and all of us are expected to perform amazing feats.
It's hard to say which stereotype
is more annoying: the disabled as helpless victims or as superheroes. It's
certainly no fun to be an object of pity. At least half a dozen times in
the past few years, well-meaning but annoying people have thrown coins
next to my plate when I've been eating at a restaurant. On the other hand,
it's just as bad to be held up as some kind of motivational guru. I wish
I had a nickel for every time someone has said that I must be so much more
"insightful" than a sighted person.
Like most people, disabled and non-disabled
alike, I'm neither victim nor star. I work as a freelance writer, shop,
take care of family responsibilities and visit friends. But you wouldn't
recognize me from the stereotypes in the media.
On one side, there are the ubiquitous
telethons, as well as movies from "Wait Until Dark," in which a blind Audrey
Hepburn is terrorized, to "Jennifer 8," where a blind Uma Thurman is stalked.
On the other, there are the icons
that some of us who are disabled have come to derisively call "supercrips."
(No disrespect intended. After all, we're talking among ourselves.) And
they set quite a standard. All of my life, people have assumed that I should
be able to sing -- and possibly play the piano -- like Ray Charles, even
though I am tone-deaf. When I was growing up, my grandmother told me that
if I couldn't find a husband, I could "become another Helen Keller." Get
serious.Keller, deaf and blind from the age of 18 months, was a writer,
a feminist, a 1904 Radcliffe College graduate, an outspoken opponent of
racismas well as an outstanding advocate for the blind. Would you have
the intelligence and stamina to do all that? Why would you think I would?
Sorry to disillusion you.
Supercrips are everywhere in the
media. The person with no use of her arms who paints masterpieces with
her feet, the guy with Tourette's syndrome who becomes a radio announcer,
Stephen Hawking explaining the universe from his wheelchair. And, of course,
that blind mountain climber.
But realistic stories about people
like me don't often make it into print or onto TV. As Joseph P. Shapiro
wrote in "No Pity: People with Disabilities Forging a New Civil Rights
Movement": "While prodigious achievement is praiseworthy. . . it does not
reflect the . . . reality of most disabled people, who struggle constantly
with smaller challenges, such as finding a bus with a wheelchair lift to
go downtown, or fighting beliefs that people with disabilities cannot work,
be educated or enjoy life as well as anyone else."
I belong to a disabled women's support
group that meets monthly. Over pizza, we discusswhat's going on in our
lives. One woman just bought her first condo ("handicapped-accessible")
and is deep into mortgage rates and maintenance fees. A paraplegic describes
balancing her career with being a wife and the mother of an 8-year-old.
A baby boomer whose speech and gait are impaired is getting her daughter
ready for college while ironing out her tense relationship with her own
mom. Those are the everyday challenges we have to surmount. They're not
Everests. They're just tougher than they might be if we weren't disabled.
George Covington, a lawyer and journalism
teacher who is legally blind, served as the special assistant for disability
affairs and a press assistant during the first Bush administration. When
I asked him about this subject last week, Covingtonsaid, "Often disabled
people tell me that they want to work in the White House like I did. I
tell them: You can. You just have to go to journalism school, go to law
school, be able to work with the media and politicians and, no problem
-- you'll get a top White House job."
The supercrip stereotype exacerbates
the already difficult challenges that people with disabilities face. If
we hear enough such stories we may feel defeated by the comparison. And
trying to live up to the image can be just as damaging.
Hugh Gregory Gallagher of Cabin Johncontracted
polio in 1952 when he was 19. Gallagher went on to study at Oxford University,
then worked as an aide tosenator Bob Bartlett of Alaska during the 1960s
-- successfully making his way in both environments when neither was wheelchair-accessible.
Gallagher, author of "Black Bird Fly Away: Disabled in an Able Bodied World,"
told me: "For years, I tried to work harder than any able-bodied person
would. My drive to become a superhero exacted a terrible price. I paid
no attention to my emotions. I became an automaton."
Don't get me wrong -- I like to readnews
reports on disabled people, at least when they're about issues -- health
insurance, discrimination, education -- that concern me and my peers.
Just keep us in some kind of real
context. Occasionally, show us not as main characters but as background
characters -- like a story about a Metro delay or the Smithsonian Folklife
Festival that includes, but doesn't necessarily feature, the folks with
white canes and wheelchairs stuck on the subway or sitting in the audience.
And on TV and in movies, give us some roles as regular characters -- like
Marlee Matlin's deaf political consultant on "The West Wing." There's been
progress on this front in the last few years; I'd like to see more.
And I'd like to see stories about
some of the peoplewho really are heroes to those of us with disabilities.
Like those who found a sudden demand for their previously unwanted services
during World War II, and rose to the challenge. While able-bodied men were
away fighting, disabled people worked in factories and offices and served
as volunteers. Reporting for a 1995 article, I talked to Norma Krajczar
of Morehead City, N.C. As a visually impaired teenager in Massachusetts,
Norma was a volunteer aircraft warden; the thought was that her sensitive
hearing would give her an advantage over sighted wardens in listening for
enemy planes. And I learned that Akron, Ohio, became known as the "crossroads
of the deaf" because of all the deaf people who came to work in tire factories
converted to defense plants -- making more money than they had ever been
able to before. Yet, even with all the reporting that's been done recently
about the Greatest Generation, you don't hear much about those folks.
Eyesight aside, I'm never going to
climb Mount Everest. I'm a lover of creature comforts who freaks if the
AC breaks down for 15 minutes. And as I told that woman at Starbucks, I'm
terrified of heights.
I don't mean to be a grouch; I know
she was trying to be nice. But next time she wants to strike up a conversation,
maybe she could try something she'd say to an able-bodied person. Like,
"The O's are tanking again." Or, "Just what's in a Frappuccino, anyway?"
I'd even settle for, "Hot enough for you?"
Now, these arethings I know about.
Kathi Wolfe lives and works in Falls
Church.
© 2001 The Washington Post Company
By Kathi Wolfe